Ownership of the All Wales Perinatal Survey (AWPS) database has been transferred to Public Health Wales.
The AWPS collected information on stillbirths and infant deaths in Wales from 1993 to 2012. The survey was undertaken by Cardiff University, with approval from the Confidentiality Advisory Group and Research Ethics Committee. Information from the AWPS was used to produce annual statistics and for looking at the patterns of these deaths over time.
The information held on the database included details about the mother, father and baby. For the mother, this included: name, address, date of birth, marital status, ethnicity, employment status and medical history. The father’s information included surname and employment status. For the baby, this included: name, date of birth, date of death, and medical information concerning their birth and death.
From 2013 onwards, this information has been collected by MBRRACE-UK (Mothers and Babies: Reducing Risk though Audits and Confidential Enquires across the UK).
Although no new information is now added to the AWPS database, ownership of the database has been transferred to Public Health Wales, with approval from the Confidentiality Advisory Group. This is to ensure that this repository of information is available to help in the understanding of long term trends and so that local clinicians can continue to access the 1993-2012 data relating to their own service.
If you have any queries, concerns or objections to this information being held by Public Health Wales, please either write to or email Dr Rosalind Reilly at:
Dr Rosalind Reilly
Consultant in Public Health
Capital Quarter 2