Can I please ask for all documentation around Public Health Wales decision to keep Long COVID and ME/CFS as separate conditions.
Further info - 7 scientific studies have now said at least half of Long COVID meet the diagnostic criteria for ME/CFS so we would like to know why PHW has not acknowledged this yet in November 2022.
Thank you for your recent request dated 4th November 2022.
Public Health Wales do not have any role in setting criteria for whether long Covid is ME/CFS and we do not hold the information requested.
If you are unhappy with the service you have received in relation to your request and wish to make a complaint or request a review of the decision, you should write to the Corporate Complaints Manager, Public Health Wales NHS Trust, 3, Number 2, Capital Quarter, Tyndall Street, Cardiff, CF10 4BZ.
If you are not content with the outcome of your complaint or review, you may apply directly to the Information Commissioner for a decision. Generally, the ICO cannot make a decision unless you have exhausted the complaints procedure provided by the Trust. The Information Commissioner can be contacted at:
Information Commissioner for Wales
2nd Floor
Churchill House
Churchill Way
Cardiff
CF10 2HH
Telephone: 029 2067 8400
Email: wales@ico.org.uk