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Using CARIS data

CARIS data are used for:
  • Feedback to clinicians for information, audit and research.  
  • Annual publications by CARIS (Publications Section)
  • Ad hoc enquiry responses
  • Formal surveillance and monitoring schemes.

You can find out more about these uses in relevant sections of the website.


EUROCATand ICBDSR (International Clearinghouse for Birth Defects Surveillance and Research) Networks provide surveillance functions and allow comparisons to be made of rates both within Europe and wider world.


EUROCAT is a European network of congenital anomalies that began in 1979. CARIS became a member in 1998. Data is transferred to EUROCAT annually. It provides software for surveillance of anomalies and for long-term trends. These results are then fed-back to the register.

More details of EUROCAT and the studies it support can be found at

International Clearing House of Birth Defect Surveillance and Reseach (ICBDSR)

ICBDSR was founded in 1975 and CARIS joined as a member in 2005. As with EUROCAT, data is transmitted on an annual basis. ICBDSR carries out a quarterly surveillance of selected anomalies, which can provide warning of a sudden rise or drop in cases.

More details of ICDBSR can be found at

Welsh data can be compared with other regions and countries of Europe by linking to the prevalence tables on the EUROCAT website at:

Welsh data can be compared to other countries of the world by downloading the latest annual report from the International Clearing House of Birth Defects, Surveillance and research website at: