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Section 8 - More information

 

 

You can also get information about screening tests from your midwife or your hospital doctor (your obstetrician) and from the Antenatal Screening Wales website.
 

If you move home

If you move home during your pregnancy, please tell your midwife so that they can update your medical records.
 

Private tests

The quality of the screening offered by the NHS in Wales is monitored. Some women pay privately to have screening tests. Screening done by private clinics is not monitored by the NHS. This means that your midwife will have no information about the quality and accuracy of any screening tests carried out by private clinics.

Antenatal Results and Choices (ARC)

Helpline: 0845 077 2290 or 0207 713 7486 from a mobile
E-mail: info@arc-uk.org
Website: www.arc-uk.org
 

Down’s Syndrome Association (DSA)

Phone: 0333 1212 300
E-mail: info@downs-syndrome.org.uk
Website: www.downs-syndrome.org.uk
 

Support Organisation for Trisomy 13/18 (Edwards’ syndrome and Patau’s syndrome) (SOFT UK)

E-mail: enquiries@soft.org.uk
Website: www.soft.org.uk
 

Sickle Cell Society

E-mail: info@sicklecellsociety.org
Website: www.sicklecellsociety.org


UK Thalassaemia Society

E-mail: info@ukts.org
Website: www.ukts.org
 

CARIS is the Congenital Anomaly Register & Information Service and childhood rare disease register for Wales.

CARIS collects information about conditions that affect the way babies develop in pregnancy. These conditions are called congenital anomalies, malformations or birth defects.

They include Down’s syndrome, heart defects or cleft lip. It is very important to know more about these sorts of conditions and their causes.

CARIS uses the information to find out how common these conditions are. The information CARIS collects also helps to show how good the health service is at picking up these conditions and is used for planning future services. If it is suspected from your screening tests that there are these types of conditions with your pregnancy, the midwife or obstetrician will pass information about this to CARIS.

The information held on the CARIS register is strictly confidential. We will never pass your name to anyone else or publish it.

If you want more information, see the Public Health Wales privacy notice.

Or write to:

The Data Protection Officer
Public Health Wales NHS Trust
2 Capital Quarter,
Tyndall Street
Cardiff,
CF10 4BZ